Saturday, April 28, 2012


From time to time, something happens around the world that requires more space and attention than our Week In Review feature can devote to it. The following is one of those events...

We've all heard of the infamous "bucket list": an agenda of the things we've should have done, want to, or need to do before we shuffle off this mortal coil.
But to create and fulfill a bucket list for a child?

With the help of her parents, that is what five month old Avery Canahuati has set out to do.

Avery has been diagnosed with Type 1 Spinal Muscular Atrophy, a currently incurable disease that will disable her internal organs. The best prognosis prevents the young lady from seeing her second birthday.

Laura and Mike Canahuati have set out to not only raise awareness of this disease, but to make young Avery's short life as enriched as it can be. Sitting up, Easter, Halloween, Christmas... ALL the milestones of life that many achieve and some take for granted are to be experienced and cherished in whatever time Avery has left upon this world.

Avery (via her parents) recently blogged about having her first kiss, from a 19 month old boy who is also facing  the end of his life due to Spinal Muscular Atrophy.

While unfortunately the very last item on Avery's list, surviving the disease, will not be accomplished within her lifetime because current research is far from a cure, the Canahuatis hope that the blog AVERY CAN will raise awareness of Spinal Muscular Atrophy and new funding towards finding the answers to defeat this disease.

You can read Avery's blog at

Ms. Canahuati also has a Facebook page that you can visit.

Let us hope that where Avery leaves off, others not only continue the battle against Spinal Muscular Atrophy, but realize that life itself is the most precious gift we are ever given, and should be lived to the fullest.

The Free Choice E-zine would like to thank Lauren Sher of the ABC News Blogs for the initial Internet post that brought this story to our attention and wish Avery and her parents all the best in a bad situation.

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